Supporting The Fragile X Society

Fragile X

06 Oct 2016 Supporting The Fragile X Society

 

Fragile X

John Dignan, Managing Director at Dynamic EMS, is pictured with training staff and members of Cardenden Swimming Club

Dynamic EMS Ltd joins forces and takes on Fragile X Syndrome.

Dynamic EMS Ltd has joined forces with Cardenden Swimming Club(CASC) to support a new campaign that has been launched to raise awareness of one of the most common, yet unknown genetic conditions in the UK, Fragile X Syndrome.

Fragile X Syndrome is the most common inherited cause of learning disabilities, affecting 15,000 people in the UK, yet, many people have never heard of it. This has had a highly detrimental impact on diagnosis, support, and treatment for people with the condition.

Launched by The Fragile X Society – the only UK charity supporting those living with the condition – #fragileXpedition is the UK’s first ever Fragile X awareness campaign.

The campaign aims to raise awareness of Fragile X, as well as funds to support individuals and families nationwide.

#fragileXpedition brings together the Fragile X community, who are collectively undertaking an 8,026 mile journey – the distance around the whole of the UK – and by walking, cycling, swimming, and even-space hopping, campaigners have been clocking up miles, telling their story, and talking to as many people as possible about Fragile X along the way.

The Cardenden Swimming Club team swam a total of 208 Miles in support off the #fragileXpedition.

Douglas Braid Head Coach of the club commented

“It was a pleasure for the Cardenden swimming club and Dynamic EMS ltd to be involved to support the Xpedition and raise awareness for such a charity”

Becky Hardiman, Chief Executive of the Fragile X Society, said:

“We have been astounded by the amazing support of our campaigners so far and wish them the best of luck as they continue to rack up the miles. It can be heart-breaking and detrimental for support for people living with Fragile X to have their needs overlooked or misunderstood, and raising awareness will help to change this”.

To find out more about #fragileXpedition, and Fragile X Syndrome itself, visit www.everydayhero.co.uk/event/fragilexpedition or www.fragilex.org.uk

Charity registration number – 1127861